As we approach this year's Bags for Brett Tournament Fundraiser! It's always important to understand how your support specifically helps Brett. We wanted to share what Brett's greatest needs are right now.
As a teenager, starting his Junior year of high school, Brett is growing exponentially! And his needs go way beyond the basics like outgrowing clothes, shoes, etc.
One of the greatest challenges his family is currently facing is that they've always relied heavily on hand-me-down items. As a child, he could find the "next size up" for wheelchairs, standing devices, and a variety of other therapy devices. But now as he is moving into "adult" size needs, these items are less available and less likely to be passed along.
Insurance only covers 1 wheelchair every 5 years. Even when it is a growing child, they do not cover the entire chair, just what they consider necessary. The process for fitting Brett and upgrading chair components can take months and he has already outgrown parts of his current chairs. He has had 4 adjustments for growth in just a year and a half.
Insurance does not cover any cost for diapers which is a huge ongoing expense.
Insurance only covers a limited amount of therapies and the rest is paid out of pocket.
Another priority need for Brett is a bed that can adjust both head and feet to help reduce pressure sores and incline him when he's sick.
Brett can also benefit from a home electrical stim machine to help with muscle stimulation and strengthening and a harness system to allow for possible air travel.
100% of all donations to Bags for Brett go directly to Brett to meet these many needs. Thank you in advance for any way you can support Brett's "growing" needs!
More info below. . .
Brett is still unable to sit-up independently, stand, or walk. Because of this, Brett requires the use of custom wheelchairs, not only to get around, but to support him in special ways. His chair also has to be set up to accommodate his talking device and the switches Brett uses to operate it. Brett requires both a motorized and non-motorized wheelchair depending on the circumstances.
He has almost outgrown his current chairs which is very problematic for his physical well being. Getting a new chair is unfortunately a very expensive and lengthy process.
Brett is fed through a feeding tube. His main meals are tube fed by hand using an extension tube and large syringes of blended foods prepared by the family. Brett also receives liquid “snacks” using an Infinity pump. Brett's medications are also administered through his feeding tube.
This requires multiple pieces of sterile equipment that are replaced daily. Brett's G-tube in his abdomen has to be replaced every 3 months.
AFOs are custom made to fit Brett properly and assure maximum benefit to Brett. AFOs help control the position and motion of the ankle, compensate for weakness, and correct deformities. AFOs can be used to support weak limbs, or to position a limb to a more normal position.
Brett requires therapy several times a week. Brett’s current therapies include physical, occupational, pool physical therapy, and assistive tech/speech.
Like Brett's equipment, insurance only covers a limited amount of these necessary therapies. These are another significant out of pocket expense.
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